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Schizophrenia – among the spectrum of mental health disorders, it’s this word that fires up our imagination the most. The imagery associated is one of someone unhinged and dangerous, and is often confused with split personality, thanks to the many media portrayals.
In short, we think of someone who needs to be kept at bay to protect ourselves.
But when has ostracising someone ever helped? Rajvi Mariwala, director of the Mariwala Health Initiative tells FIT that the stereotypes are misleading and harmful.
TLDR? Listen to the story here:
In our 1.24 billion plus country, over 42% lives below the poverty line. According to a 2018 study by Dr Sriram of the University of Southern California, mental health disorders affect 13.7% of us, and because we aren’t addressing this enough, it has been called India’s silent epidemic.
Mental illness, especially when undiagnosed, can cause homelessness and plunge the survivor into poverty because of the strongly associated stigma and ostracisation.
Mary Stella of The Banyan, an NGO that works with mentally ill homeless women, tells FIT that “Many people become homeless because of their mental illness. Some of the women we rescue have run away while in some cases the family does not care or cannot afford healthcare.”
The high medical cost is prohibitive to many people with mental illness. Mariwala breaks down the reasons they might become homeless.
Stella adds that a huge focus of the organisation she works with is to rehabilitate the mentally ill women with their families; “90% of the time they go back,” she says.
Most often, the women are untreated and run away, but after finding them and their families and consulting with them, it is possible to reunite them says Stella.
Dr Sriram’s study also adds that it is worth looking at it in reverse as well, so investigating the reasons behind poverty can often bring up undiagnosed cases of mental health.
Mariwala also adds that schizophrenia can often be exacerbated by poverty, in the other side of the cycle.
Mr Bhakshy, president of NGO Schizophrenia Awareness Association (SAA), tells us that the law is built to help people overcome the high cost of medication, “People below the poverty line are entitled to free treatment for mental health illness in a government hospital. Additionally, anyone can avail free essential drugs.”
He also adds that the policies have improved with the new Mental Health Care Act (2017) which says that mental health has to be covered under insurance policies.
The 2018 study still asserts that government policies should do more, especially given that stigma and that mental health isn’t prioritized within the community, “the government should allocate more resources to improving access to mental health and take appropriate poverty alleviation measures.”
Non-governmental organisations like The Banyan and SAA and many more, are also instrumental in bridging the health care gap.
Mr Bhakshy offers a case study example saying that one Radha Rane* (name changed) from Pune, Maharashtra, is a caregiver of her two children, both living with schizophrenia. Her husband is a construction worker on daily wages, and SAA has waived the tuition fees and travel charges of their daughter who attends SAA’s rehab Center.
Another way to move forward is to create a care economy, where community members are sensitised to the survivor and their needs, and so through awareness and empathy the stigma slowly fades away.
(At The Quint, we question everything. Play an active role in shaping our journalism by becoming a member today.)
Published: 24 May 2019,04:18 PM IST